Welcome

Welcome to the National Coordinating and Evaluation Center for the Sickle Cell Disease Newborn Screening Program

The Sickle Cell Disease Newborn Screening Program is comprised of six community-based sickle cell disease projects located in Illinois, Massachusetts, New York, Ohio, Pennsylvania and Tennessee and the National Coordinating and Evaluation Center, located at the National Initiative for Children’s Healthcare Quality.

The community-based sickle cell disease projects partner with state newborn screening programs, comprehensive sickle cell treatment centers and health care professionals to provide support to infants screened positive for SCD and trait and their families. The projects work cooperatively and with the National Coordinating and Evaluation Center to implement a model program of sickle cell disease carrier follow-up to include notification, extended family testing, counseling and education of affected individuals and families.

The Sickle Cell Disease Newborn Screening Program is administered by the Genetic Service Branch of the Division of Services for Children with Special Health Needs in Health Resources and Services Administration's Maternal and Child Health Bureau. For more information on MCHB programs, visit the Bureau's Web site at www.mchb.hrsa.gov.

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