The Sickle Cell Disease and Newborn Screening Program (SCD-NBS) is comprised of 17 national funded community based sickle cell disease (SCD) projects located in NY (2), AL, GA, NC (2), IL, TN, AR, FL (2), MO, PA (2), OH, CA (2) and the National Coordinating and Evaluation Center – Sickle Cell Disease Association of America project (NCEC-SCDAA).

The community-based SCD projects partner with State newborn screening programs, comprehensive sickle cell treatment centers, and health care professionals to provide support to infants screened positive for SCD and trait and their families. The projects work cooperatively and with the SCDAA-NCEC to implement a model program of SCD carrier follow-up to include notification, extended family testing, counseling and education of affected individuals and families.

The Sickle Cell Disease and Newborn Screening Program is administered by the Genetic Service Branch of the Division of Services for Children with Special Health Needs in Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB). For more information on MCHB programs, visit the Bureau's Web site at www.mchb.hrsa.gov.

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